Themes in daily life of adolescents and young adults with congenital bleeding disorders: a qualitative study-Reference-Cited by-同舟云学术

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Themes in daily life of adolescents and young adults with congenital bleeding disorders: a qualitative study

Published:2016-05-24 Issue:4 Volume:22 Page:e330-e333
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

Limperg P.¹,Peters M.²,Gibbons E.³,Coppens M.⁴,Valk C.⁴,Grootenhuis M.¹,Haverman L.¹

Affiliation:

1. Psychosocial Department; Emma Children's Hospital; AMC; Amsterdam the Netherlands

2. Department of Pediatric-Hematology; Emma Children's Hospital and Hemophilia Comprehensive Care Treatment Center; AMC; Amsterdam the Netherlands

3. Health Services Research Unit; Nuffield Department of Population Health; University of Oxford; Oxford England

4. Department of Vascular Medicine; Hemophilia Comprehensive Care Treatment Center; AMC; Amsterdam the Netherlands

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/hae.12961/fullpdf

Reference10 articles.

1. Towards comprehensive care in transition for young people with haemophilia;Breakey;Haemophilia,2010

2. Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood;Stam;J Adolesc Health,2006

3. Transitioning issues in adolescent to young adult hemophilia patients with inhibitors: an approach for a growing population;Young;Blood Coagul Fibrinolysis,2010

4. Achievement of developmental milestones in emerging and young adults with and without pediatric chronic illness-a meta-analysis;Pinquart;J Pediatr Psychol,2014

5. Haemophilia care in adolescents - compliance and lifestyle issues;Petrini;Haemophilia,2009

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The Perspectives of Adolescents and Young Adults on Adherence to Prophylaxis in Hemophilia: A Qualitative Study

;Patient Preference and Adherence;2020-01

4. Illness perceptions and their relation to physical activity in children and adolescents with hemophilia;Health Psychology and Behavioral Medicine;2020-01-01

5. Living with Polyneuropathy Organomegaly Endocrinopathy Monoclonal gammopathy Skin changes (POEMS) syndrome: a case study of healthcare experiences and quality of life;Disability and Rehabilitation;2019-12-14

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