The burden of bleeds and other clinical determinants on caregivers of children with haemophilia (the BBC Study)-Reference-Cited by-同舟云学术

The burden of bleeds and other clinical determinants on caregivers of children with haemophilia (the BBC Study)

Published:2019-03-29 Issue:3 Volume:25 Page:416-423
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

Khair Kate¹²^ORCID,Klukowska Anna³,Myrin Westesson Linda⁴,Kavakli Kaan⁵^ORCID,Escuriola Carmen⁶,Uitslager Nanda⁷,Santoro Cristina⁸^ORCID,Holland Mike⁹,von Mackensen Sylvia¹⁰^ORCID

Affiliation:

1. Centre for Outcomes and Experience Research in Childhood Health, Illness and Disability (ORCHID) Great Ormond Street Hospital for Children NHS Trust London UK

2. Haemophilia Centre Great Ormond Street Hospital for Children NHS Trust London UK

3. Department of Paediatrics, Haematology Oncology Warsaw Medical University Warsaw Poland

4. Department of Medicine/Haematology and Coagulation Disorders Coagulation Centre Sahlgrenska University Hospital Gothenburg Sweden

5. Ege Haemophilia Centre Izmir Turkey

6. Haemophilia Centre Rhein Main (HZRM) Mörfelden‐Walldorf Germany

7. Van Creveldkliniek Division of Internal Medicine and Dermatology University Medical Center Utrecht Utrecht The Netherlands

8. Haemophilia Centre of La Sapienza University Rome Italy

9. Haemnet London UK

10. Department of Medical Psychology University Medical Centre Hamburg‐Eppendorf Hamburg Germany

Publisher

Wiley

Subject

Genetics(clinical),Hematology,General Medicine

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/hae.13736

Reference36 articles.

1. Musculoskeletal Aspects of Haemophilia

2. A United Kingdom Haemophilia Centre Doctors’ Organization guideline approved by the British Committee for Standards in Haematology: guideline on the use of prophylactic factor VIII concentrate in children and adults with severe haemophilia A

3. Parents of children with haemophilia ? a transforming experience

4. A tortuous route to a capable fatherhood: the experience of being a father to a child with severe haemophilia

5. The experience of being a female carrier of haemophilia and the mother of a haemophilic child

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