Who rules rare disease associations? A framework to understand their action
Author:
Publisher
Wiley
Subject
Public Health, Environmental and Occupational Health,Health Policy,Health(social science)
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1111/j.1467-9566.2009.01177.x/fullpdf
Reference25 articles.
1. Health consumer groups in the UK: a new social movement?;Allsop;Sociology of Health and Illness,2004
2. ‘Social irresponsibility in management’;Armstrong;Journal of Business Research,1977
3. ‘Building the French Muscular Dystrophy Association: the role of doctor/patient interactions’;Bach;Social History of Medicine,1998
4. Speaking for Patients and Carers
5. Health consumer and patients’ organisations in Europe: towards a comparative analysis;Baggott;Health Expectations,2008
Cited by 20 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献
1. Empowerment of genetic information by women at-risk of being carriers of Duchenne and Becker muscular dystrophies;Journal of Community Genetics;2024-01-02
2. How do patients and other members of the public engage with the orphan drug development? A narrative qualitative synthesis;Orphanet Journal of Rare Diseases;2023-04-17
3. Micropolitics of Rare Diseases in Italy;Medical Anthropology;2022-09-15
4. Representation of Patients With Rare Diseases in Spanish Media;Research Anthology on Improving Health Literacy Through Patient Communication and Mass Media;2022
5. Le paysage associatif du cancer : quelles spécificités pour les associations de parents ?;Anthropologie et Santé;2021-11-23
1.学者识别学者识别
2.学术分析学术分析
3.人才评估人才评估
"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370
www.globalauthorid.com
TOP
Copyright © 2019-2024 北京同舟云网络信息技术有限公司 京公网安备11010802033243号 京ICP备18003416号-3