The experiences and preparedness of family carers for best interest decision-making of a relative living with advanced dementia: A qualitative study

Author:

Carter Gillian1ORCID,McLaughlin Dorry1,Kernohan W. George2ORCID,Hudson Peter13,Clarke Mike4,Froggatt Katherine5,Passmore Peter4,Brazil Kevin1

Affiliation:

1. School of Nursing and Midwifery; Queen's University Belfast; Belfast UK

2. School of Nursing; Ulster University; Newtownabbey UK

3. St Vincent's Hospital; University of Melbourne; Melbourne Australia

4. School of Medicine; Dentistry and Biomedical Sciences; Queen's University Belfast; Belfast UK

5. International Observatory on End of Life Care; Division of Health Research; Faculty of Health and Medicine; Lancaster University; Lancaster UK

Funder

Health and Social Care Public Health Agency Northern Ireland

Atlantic Philanthropies

Publisher

Wiley

Subject

General Nursing

Reference53 articles.

1. Alzheimer's Disease International 2016 World Alzheimer Report 2016: Improving healthcare for people living with dementia coverage, Quality and costs now and In the future https://www.alz.co.uk/research/WorldAlzheimerReport2016.pdf

2. End of life care: The experiences of advance care planning amongst family caregivers of people with advanced dementia - A qualitative study;Ashton;Dementia (London),2016

3. Distinctions between social support concepts, measures, and models;Barrera;American Journal of Community Psychology,1986

4. Surrogate decision makers’ understanding of dementia patients’ prior wishes for end-of-life care;Black;Journal of Aging and Health,2009

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