Experiences of families with children diagnosed with Autism Spectrum Disorder in World Health Organization Afro‐Regions: A scoping review

Author:

Baloyi Olivia1,Jarvis Mary Ann1,Chironda Geldine1ORCID,Mbeje Pretty1,Ngcobo Silingene Joyce1,Gqaleni Thusile1,Mhlongo Euphemia Mbali1,Ngcobo Winnie Baphumelele1,Brysiewicz Petra1

Affiliation:

1. Department of Nursing College of Health Sciences, School of Nursing and Public Health, University of KwaZulu‐Natal Durban South Africa

Abstract

AbstractA scoping review on Autism Spectrum Disorder (ASD) and its impact on the families of affected children was undertaken due to insufficient information available on the diverse experiences impacting their lives. Using the Joanna Briggs Institute methodology, eligibility criteria were guided by Population (families), Concept (family experiences), and Context (African region). English‐language articles were sought from a variety of databases and search engines. The publication date of the identified articles ranged from 2003 to 2021 with most published in 2020 (n = 10), and the majority using qualitative methodologies (n = 51). Most family members involved were parents (n = 51) and their ages ranged from 18 to 75 years. The families experienced various challenges related to their child with regard to education, healthcare, and the broader community including lack of support. Family coping strategies included believing in God, attending counseling sessions, adapting, and accepting the situation. Healthcare professionals should be prepared and positioned to educate families and siblings on various aspects of ASD. There is a need for active, continued research on families within most countries of World Health Organization Afro‐region.

Publisher

Wiley

Reference155 articles.

1. Abebe B.(2020).The lived experiences of mothers raising children diagnosed with Autism Spectrum Disorder in Ethiopia: Perceptions and challenges[Unpublished master's thesis]. University of Stavanger.https://hdl.handle.net/11250/2677675

2. Autism spectrum disorders in sub-Saharan Africa

3. An Exploration into Mothers’ Experiences of Feeding Children with Autism Spectrum Disorder in South Africa

4. ‘A blender without the lid on’: Mealtime experiences of caregivers with a child with autism spectrum disorder in South Africa

5. Cultural Issues

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