Residual newborn screening samples for research: Parental information needs for decision-making-Reference-Cited by-同舟云学术

Residual newborn screening samples for research: Parental information needs for decision-making

Published:2013-03-05 Issue:2 Volume:18 Page:115-122
ISSN:1539-0136
Container-title:Journal for Specialists in Pediatric Nursing
language:en
Short-container-title:J Spec Pediatr Nurs

Author:

Rothwell Erin¹,Clark Lauren¹,Anderson Rebecca²,Botkin Jeffrey R.³

Affiliation:

1. College of Nursing; University of Utah; Salt Lake City Utah USA

2. Department of Pediatrics; GeneSIS Center; University of Utah; Salt Lake City Utah USA

3. School of Medicine; Department of Pediatrics; University of Utah; Salt Lake City Utah USA

Funder

University of Utah College of Nursing Research Program

Publisher

Wiley

Subject

Pediatrics

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/jspn.12017/fullpdf

Reference27 articles.

1. Committee on Bioethics, American Academy of Pediatrics. Informed consent, parental permission, and child assent in pediatric practice;American Academy of Pediatrics;Pediatrics,1995

2. Serving the family from birth to the medical home. Newborn screening: A blueprint for the future-a call for a national agenda on state newborn screening programs;American Academy of Pediatrics;Pediatrics,2000

3. American College of Medical Genetics 2009 Position statement on the importance of residual newborn screening dried blood spots http://www.acmg.net/StaticContent/NewsReleases/Blood_Spot_Position_Statement2009.pdf

4. Newborn screening: Ethical, legal and social implications;Anderson;Annual Review of Nursing Research,2012

5. A seat at the table: Membership in federal advisory committees evaluating public policy in genetics;Ard;American Journal of Public Health,2001

Cited by 5 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Factors associated with maternal consent for use of residual newborn bloodspots in the National Birth Defects Prevention Study;Birth Defects Research;2022-02-23

2. Prenatal Education of Parents About Newborn Screening and Residual Dried Blood Spots;JAMA Pediatrics;2016-06-01

3. Eliciting parental support for the use of newborn blood spots for pediatric research;BMC Medical Research Methodology;2016-02-04

4. Ethical Considerations When Including Lysosomal Storage Disorders in Newborn Screening Programs;Current Genetic Medicine Reports;2015-10-16

5. Public concerns regarding the storage and secondary uses of residual newborn bloodspots: an analysis of print media, legal cases, and public engagement activities;Journal of Community Genetics;2014-12-23