What is important for advance care planning in the palliative phase of people with intellectual disabilities? A multi‐perspective interview study-Reference-Cited by-同舟云学术

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What is important for advance care planning in the palliative phase of people with intellectual disabilities? A multi‐perspective interview study

Published:2019-08-23 Issue:2 Volume:33 Page:160-171
ISSN:1360-2322
Container-title:Journal of Applied Research in Intellectual Disabilities
language:en
Short-container-title:J Appl Res Intellect Disabil

Author:

Voss Hille¹^ORCID,Vogel Anique²,Wagemans Annemieke M. A.²³⁴,Francke Anneke L.¹⁵⁶,Metsemakers Job F. M.⁴,Courtens Annemie M.³,Veer Anke J. E.¹

Affiliation:

1. Netherlands Institute of Health Services Research (NIVEL) Utrecht The Netherlands

2. Maasveld Koraal Maastricht The Netherlands

3. Expertise Centre for Palliative Care Maastricht University Medical Centre Maastricht The Netherlands

4. Department of Family Medicine, Faculty of Health, Medicine and Life Science Maastricht University Maastricht The Netherlands

5. Amsterdam Public Health Research Institute (APH) VU Medical Centre Amsterdam The Netherlands

6. Expertise Centre for Palliative Care Amsterdam VU Medical Centre Amsterdam The Netherlands

Funder

ZonMw

Publisher

Wiley

Subject

Developmental and Educational Psychology,Education

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/jar.12653

Reference45 articles.

1. Training needs of nurses and social workers in the end-of-life care for people with intellectual disabilities: A national survey

2. Respecting autonomy in the end-of-life care of people with intellectual disabilities: a qualitative multiple-case study

3. ‘From activating towards caring’: shifts in care approaches at the end of life of people with intellectual disabilities; a qualitative study of the perspectives of relatives, care-staff and physicians

4. Perspectives of people with mild intellectual disabilities on care relationships at the end of life: A group interview study

5. Ageing people with a lifelong disability: challenges for the aged care and disability sectors

Cited by 14 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. My plan for a good life, right to the end: An accessible approach to advance care planning;Journal of Intellectual & Developmental Disability;2024-06-17

2. Experiences of Advance Care Planning in Epileptic Patients with Intellectual Disability;Palliative Care Research;2024

3. Perceived barriers and facilitators to good end of life care: Focusing on people with intellectual disabilities;Journal of Applied Research in Intellectual Disabilities;2023-12-14

4. Qualitative methodological approaches involving participants with intellectual disabilities: Scoping review of literature exploring death and dying;Journal of Applied Research in Intellectual Disabilities;2023-06-14

5. Challenges and opportunities for improvement when people with an intellectual disability or serious mental illness also need palliative care: A qualitative meta-ethnography;Palliative Medicine;2023-06-09

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