Consensus statement of the International Summit on Intellectual Disability and Dementia related to end‐of‐life care in advanced dementia

Author:

McCallion Philip1,Hogan Mary2,Santos Flavia H3,McCarron Mary4,Service Kathryn5,Stemp Sandy6,Keller Seth7,Fortea Juan8,Bishop Kathleen9,Watchman Karen10,Janicki Matthew P11ORCID,

Affiliation:

1. University at Albany Albany NY USA

2. National Task Group on Intellectual Disabilities and Dememtia Practices Eliot ME USA

3. University of Minho Braga Portugal

4. Trinity College Dublin Dublin Ireland

5. Nurse Practitioner Consultant Northampton MA USA

6. Reena Foundation Toronto ON Canada

7. American Academy of Developmental Medicine and Dentistry Lumberton NJ USA

8. Catalan Foundation for Down Syndrome Barcelona Spain

9. Geriatrics Consultant Lee Center NY USA

10. University of Stirling Stirling Scotland

11. University of Illinois at Chicago Chicago IL USA

Funder

National Institute on Disability, Independent Living, and Rehabilitation Research

Publisher

Wiley

Subject

Developmental and Educational Psychology,Education

Reference25 articles.

1. Advance Care Planning and the Quality of End-of-Life Care in Older Adults

2. European Association for Palliative Care. (2015).Consensus norms for palliative care of people with intellectual disabilities in Europe: EAPC White Paper. Retrieved from:www.learningdisabilityanddementia.org/uploads/1/1/5/8/11581920/eapc-white-paper-id_full-version_april-2015.pdf

3. Fahey‐McCarthy E. McCallion P. Connaire K. &McCarron M. (2008).Supporting persons with intellectual disability and advanced dementia: Fusing the horizons of care. An introductory education and training programme. Trainer's manual. Dublin Ireland: Trinity College Dublin. Retrieved from:https://nursing-midwifery.tcd.ie/assets/publications/pdf/fusing-horizons-of-care.pdf.

4. Developing an Education Intervention for Staff Supporting Persons With an Intellectual Disability and Advanced Dementia

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