Family caregiver distress with children having rare genetic disorders: a qualitative study involving Russell-Silver Syndrome in Taiwan
Author:
Publisher
Wiley
Subject
General Medicine,General Nursing
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1111/j.1365-2702.2010.03583.x/fullpdf
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4. Stress and well-being among parents of children with rare diseases: a prospective intervention study.Journal of Advanced Nursing;Dellve;Journal of Advanced Nursing,2006
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5. Children with a rare congenital genetic disorder: a systematic review of parent experiences;Orphanet Journal of Rare Diseases;2022-10-17
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