Determining meaningful health‐related quality‐of‐life improvement in persons with haemophilia A using the Haemophilia Quality of Life Questionnaire for Adults (Haem‐A‐QoL)-Reference-Cited by-同舟云学术

Determining meaningful health‐related quality‐of‐life improvement in persons with haemophilia A using the Haemophilia Quality of Life Questionnaire for Adults (Haem‐A‐QoL)

Published:2020-10-21 Issue:6 Volume:26 Page:1019-1030
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

Mackensen Sylvia¹^ORCID,Catalani Olivier²,Asikanius Elina²,Paz‐Priel Ido³,Lehle Michaela²,Trask Peter³

Affiliation:

1. Department of Medical Psychology University Medical Centre Hamburg‐Eppendorf Hamburg Germany

2. F. Hoffmann‐La Roche Ltd Basel Switzerland

3. Genentech, Inc South San Francisco CA USA

Funder

Roche

Publisher

Wiley

Subject

Genetics(clinical),Hematology,General Medicine

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/hae.14184

Reference35 articles.

1. European Study on Orthopaedic Status of haemophilia patients with inhibitors

2. Quality of life is associated to the orthopaedic status in haemophilic patients with inhibitors

3. The Impact of bleeding disorders on the socioeconomic status of adult patients;Holstein K;Hamostaseologie,2018

4. Real-world comparative analysis of bleeding complications and health-related quality of life in patients with haemophilia A and haemophilia B

5. Assessments of pain, functional impairment, anxiety, and depression in US adults with hemophilia across patient-reported outcome instruments in the Pain, Functional Impairment, and Quality of Life (P-FiQ) study

Cited by 9 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Effect of etranacogene dezaparvovec on quality of life for severe and moderately severe haemophilia B participants: Results from the phase III HOPE‐B trial 2 years after gene therapy;Haemophilia;2024-03-10

2. Observational cohort study of long‐term outcomes of liver transplantation in haemophilia;Haemophilia;2023-12-18

3. Fitusiran prophylaxis in people with severe haemophilia A or haemophilia B without inhibitors (ATLAS-A/B): a multicentre, open-label, randomised, phase 3 trial;The Lancet Haematology;2023-05

4. From a bispecific monoclonal antibody to gene therapy: A new era in the treatment of hemophilia A;Biomedical Papers;2023-03-15

5. Assessment of the clinical perception, quality of life and satisfaction of patients with severe congenital haemophilia A without inhibitor after 1 year of emicizumab therapy;Haemophilia;2023-02-07