The dyadic self‐care experience of stroke survivors and their caregivers: A qualitative descriptive study

Author:

Wang Wenna12ORCID,Pucciarelli Gianluca3ORCID,Mei Yongxia2ORCID,Zhang Zhenxiang2ORCID,Vellone Ercole34ORCID

Affiliation:

1. Academy of Medical Sciences Zhengzhou University Zhengzhou Henan China

2. School of Nursing and Health Zhengzhou University Zhengzhou Henan China

3. Department of Biomedicine and Prevention University of Rome “Tor Vergata” Rome Italy

4. Department of Nursing and Obstetrics Wroclaw Medical University Wrocław Poland

Abstract

AbstractBackgroundPromoting self‐care is the core response strategy of the global health system to the burden of stroke. Although self‐care in stroke represents a dyadic phenomenon, the dyadic self‐care experience of stroke survivors and their caregivers is often overlooked in clinical practice.ObjectivesThe aim of this study was to explore the dyadic self‐care experience of stroke survivors and their caregivers.DesignA descriptive qualitative design was used to conduct the study.ResultsThe Consolidated Criteria for Reporting Qualitative Research was used for study reporting. A total of 21 stroke survivor–caregiver dyads were recruited for this study between May 2022 and September 2022. Data were collected through semistructured interviews and analyzed using thematic analysis. In this study, four themes were identified: (1) poor relationship quality of the dyads, (2) dyadic incongruence in managing stroke, (3) a slow and tiring dyadic self‐care process and (4) happy cooperation in coping with dyadic self‐care.Discussion and ConclusionHealthcare professionals should give greater consideration to the contradictions and disparities that may arise between stroke survivors and caregivers during the self‐care process. It is crucial for them to provide personalized and tailored support and interventions that can assist these individuals in achieving a more optimal balance in their dyadic self‐care.Patient/Public ContributionPatients were involved in the formulation of interview questions for this study. No members of the public were involved in this study.

Funder

National Natural Science Foundation of China

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health

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