Ascertainment of Aboriginal and Torres Strait Islander status for assessment of perinatal health outcomes: Reported versus derived maternal ethnicity in Western Australian pregnancy data

Author:

Berman Ye'elah E.1ORCID,Newnham John P.1ORCID,Ward Sarah V.1,Brown Kiarna23,Doherty Dorota A.1ORCID

Affiliation:

1. Division of Obstetrics and Gynaecology, Medical School The University of Western Australia Perth Western Australia Australia

2. Royal Darwin Hospital Darwin Northern Territory Australia

3. Menzies School of Health Research Darwin Northern Territory Australia

Abstract

BackgroundUnder‐identification of Aboriginal and Torres Strait Islander (hereafter referred to as Aboriginal) people can result in inaccurate estimation of health outcomes. Data linkage has improved identification of Aboriginal people in administrative datasets.AimTo compare three methods of ascertainment of Aboriginal status using only pregnancy data from the Western Australian Midwives Notification System (MNS), to the linked Indigenous Status Flag (ISF) derived by the Department of Health.Materials and MethodsThis retrospective population‐based cohort study utilised logistic regression to determine which demographic characteristics were associated with under‐identification, and the effect of ascertainment method on perinatal adverse outcomes.ResultsAll methods identified a core group of 19 017 (83.0%) Aboriginal women and the ISF identified 2298 (10.0%) women who were not identified using any other method. Under‐ascertainment was lowest when a woman's Aboriginal status was determined by ever being recorded as Aboriginal in the MNS data, and highest when taken as it had been recorded for the birth in question. Maternal age <20 years, smoking during pregnancy, pre‐existing diabetes, a history of singleton preterm birth and being in the lowest 20% of Socio‐Economic Indexes for Areas score were all associated with a higher chance of being identified by the methods using only the MNS. These methods were less likely to identify nulliparous women, and those with maternal age ≥35 years. The method of ascertainment of Aboriginality did not make a significant difference to the adjusted predicted marginal probabilities of adverse perinatal outcomes.ConclusionUnlinked pregnancy data can be used for epidemiological research in Aboriginal obstetric populations.

Funder

Channel 7 Telethon Trust

Publisher

Wiley

Reference24 articles.

1. Evidence for the use of an algorithm in resolving inconsistent and missing Indigenous status in administrative data collections

2. BiddleN MarkhamF.Indigenous identification between 2011 and 2016: evidence from the Australian Census Longitudinal Dataset.2018. CAEPR Topical Issue 1/2018. Centre for Aboriginal Economic Policy Research Australian National University Canberra.

3. A decade of data linkage in Western Australia: strategic design, applications and benefits of the WA data linkage system

4. Improvement of maternal aboriginality in NSW birth data;Xu F;BMC Med Res Methodol,2012

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