Biobanking and Privacy Law in Brazil

Author:

Dallari Sueli Gandolfi,Castellaro Felipe Angel Bocchi,Guerriero Iara Coelho Zito

Abstract

Recent scientific and technological developments have promoted the emergence of biobanks on a population scale. Although the storage of human biological material has taken place for a long time, it is only recently that biobanks have acquired a broader scientific significance, especially for genomic research. The increase in biobanks creates many ethical dilemmas, such as the protection of privacy, and creates the need for a new regulatory framework, which must enable the sustainable development of biobanks while also protecting the rights of research subjects and biobank participants.

Publisher

Cambridge University Press (CUP)

Subject

Health Policy,General Medicine,Issues, ethics and legal aspects

Reference43 articles.

1. 40. See Marodin, 2014, supra note 26.

2. 5. Brazilian Law n. 11.105, March 24, 2005.

3. Delineamento e implementacao do biobanco do ELSA-Brasil: estudo prospectivo na populacao brasileira

4. Ethics and biobanks

5. 17. The CEPs (Comitês de Ética em Pesquisa) are equivalent to the American Institutional Review Boards (IRB) and the Canadian Research Ethics Boards (REB). To the purposes of this paper, the CEPs will be named as Institutional Review Boards.

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