Development of a fragile X syndrome (FXS) knowledge scale: towards a modified multidimensional measure of informed choice for FXS population carrier screening-Reference-Cited by-同舟云学术

Development of a fragile X syndrome (FXS) knowledge scale: towards a modified multidimensional measure of informed choice for FXS population carrier screening

Published:2012-10-15 Issue:1 Volume:18 Page:69-80
ISSN:1369-6513
Container-title:Health Expectations
language:en
Short-container-title:Health Expect

Author:

Ames Alice G.¹²,Jaques Alice²,Ukoumunne Obioha C.³,Archibald Alison D.⁴⁵⁶,Duncan Rony E.⁷¹,Emery Jon⁸,Metcalfe Sylvia A.²¹

Affiliation:

1. Department of Paediatrics; The University of Melbourne; Parkville Vic. Australia

2. Genetics Education and Health Research; Murdoch Childrens Research Institute; Parkville Vic. Australia

3. PenCLAHRC; Peninsula College of Medicine and Dentistry; University of Exeter; Exeter UK

4. Genetics Education and Health Research; Murdoch Childrens Research Institute; Melbourne Vic. Australia

5. Victorian Clinical Genetics Services; Melbourne Vic. Australia

6. Department of Paediatrics; The University of Melbourne; Melbourne Vic. Australia

7. Health Services Delivery for Adolescents; Murdoch Childrens Research Institute; Parkville Vic. Australia

8. Aboriginal and Rural Health Care (SPARHC); The University of Western Australia; Crawley WA Australia

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/hex.12009/fullpdf

Reference52 articles.

1. Population genetic screening programmes: principles, techniques, practices, and policies;Godard;European Journal of Human Genetics,2003

2. A measure of informed choice;Marteau;Health Expectations,2001

3. Are pregnant women making informed choices about prenatal screening?;van den Berg;Genetics in Medicine,2005

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