Patient‐reported outcomes in autosomal inherited bleeding disorders: A systematic literature review

Author:

Hoorn Evelien S.1,Houwing Maite E.2,Al Arashi Wala2,Leebeek Frank W. G.3,Hazelzet Jan A.1,Gouw Samantha C.4,Schutgens Roger E. G.5,Schols Saskia E. M.6,Lingsma Hester F.1,Cnossen Marjon H.2,

Affiliation:

1. Erasmus MC University Medical Centre Rotterdam, Department of Public Health Rotterdam The Netherlands

2. Erasmus MC – Sophia Children's Hospital University Medical Centre Rotterdam, Department of Paediatric Haematology Rotterdam The Netherlands

3. Erasmus MC Erasmus University Medical Centre Rotterdam, Department of Haematology Rotterdam The Netherlands

4. Emma Children's Hospital Amsterdam UMC University of Amsterdam, Department of Paediatric Haematology Amsterdam The Netherlands

5. Van Creveldkliniek University Medical Centre Utrecht, Utrecht University Utrecht The Netherlands

6. Radboud University Medical Centre, Department of Haematology Nijmegen The Netherlands

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Reference60 articles.

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2. The case of value-based healthcare for people living with complex long-term conditions

3. The strategy that will fix health care;Porter ME;Harv Bus Rev,2013

4. Guidance for industry, patient‐reported outcome measures: use in medical product development to support labeling claim;Administration USFaD;Fed Regist,2009

5. Linking Clinical Variables With Health-Related Quality of Life

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