Healthy Parent Carers: Acceptability and practicability of online delivery and learning through implementation by delivery partner organisations

Author:

Garrood Alice1ORCID,Bjornstad Gretchen2ORCID,Borek Aleksandra3ORCID,Gillett Annette2ORCID,Lloyd Jenny4ORCID,Brand Sarah2ORCID,Tarrant Mark2ORCID,Ball Susan2ORCID,Hawton Annie5ORCID,McDonald Annabel1ORCID,Fredlund Mary1ORCID,Boyle Fleur1ORCID,Berry Vashti2ORCID,Logan Stuart1ORCID,Morris Christopher1ORCID

Affiliation:

1. Peninsula Childhood Disability Research Unit (PenCRU) and NIHR Applied Research Collaboration South West Peninsula (PenARC) University of Exeter Medical School, University of Exeter Exeter UK

2. NIHR Applied Research Collaboration South West Peninsula (PenARC) University of Exeter Exeter UK

3. Nuffield Department of Primary Care Health Sciences, Medical Sciences Division University of Oxford, Radcliffe Observatory Quarter Oxford UK

4. Relational Health Group and NIHR Applied Research Collaboration (PenARC) South West Peninsula, Department of Health and Community Sciences, Institute of Health Research, University of Exeter Medical School University of Exeter Exeter UK

5. Health Economics Group and NIHR Applied Research Collaboration (PenARC) South West Peninsula University of Exeter Medical School, University of Exeter Exeter UK

Abstract

AbstractBackgroundParent carers of disabled children are at increased risk of physical and mental health problems. The Healthy Parent Carers (HPC) programme is a manualised peer‐led group‐based programme that aims to promote parent carer health and wellbeing. Previously, the programme had been delivered in person, with recruitment and delivery managed in a research context. This study explored implementation by two delivery partner organisations in the United Kingdom. Facilitator Training and Delivery Manuals were modified for online delivery using Zoom due to COVID‐19.MethodsThe study methodology utilised the Replicating Effective Programs framework. A series of stakeholder workshops informed the development of the Implementation Logic Model and an Implementation Package. After delivering the programme, delivery partner organisations and facilitators participated in a workshop to discuss experiences of implementing the programme. A wider group of stakeholders, including commissioners, Parent Carer Forums and charity organisations representatives and researchers subsequently met to consider the sustainability and potential barriers to delivering the programme outside the research context.ResultsThis study explored implementation by two delivery partner organisations in the United Kingdom that were able to recruit facilitators, who we trained, and they recruited participants and delivered the programme to parent carers in different localities using Zoom. The co‐created Implementation Logic Model and Implementation Package were subsequently refined to enable the further roll‐out of the programme with other delivery partner organisations.ConclusionsThis study provides insight and understanding of how the HPC programme can be implemented sustainably outside of the research context. Further research will evaluate the effectiveness of the programme and refine the implementation processes.Patient and Public ContributionParent carers, delivery partner organisation staff and service commissioners were consulted on the design, delivery and reporting of the research.

Funder

Economic and Social Research Council

National Lottery Community Fund

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health

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