1. Louis Dundas Centre for Children's Palliative Care; Institute of Child Health; University College London; London UK
2. Marie Curie Palliative Care Research Department; Division of Psychiatry; University College London; London UK
3. Louis Dundas Centre for Children's Palliative Care; Great Ormond Street Hospital for Children; NHS Foundation Trust; London UK
4. Department of Sociology; Anthropology and Criminal Justice; Rutgers University; Camden NJ USA