ACTIVLIM‐Hemo: A new self‐reported, unidimensional and linear measure of activity limitations in persons with haemophilia-Reference-Cited by-同舟云学术

ACTIVLIM‐Hemo: A new self‐reported, unidimensional and linear measure of activity limitations in persons with haemophilia

Published:2022-12-12 Issue:1 Volume:29 Page:317-328
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

Lobet Sébastien¹²³^ORCID,Lambert Catherine¹^ORCID,Foubert Anthe⁴⁵⁶^ORCID,Chantrain Valérie‐Anne⁴⁵⁶^ORCID,Roussel Nathalie⁴^ORCID,Meeus Mira⁴⁵⁷^ORCID,Devos Ann⁸,Maes Philip⁸,Hermans Cedric¹^ORCID,Penta Massimo⁹¹⁰^ORCID

Affiliation:

1. Haemostasis and Thrombosis Unit, Division of Hematology, Clinique Universitaires Saint‐Luc Université Catholique de Louvain (UCLouvain) Brussels Belgium

2. Secteur de Kinésithérapie, Cliniques Universitaires Saint‐Luc Université Catholique de Louvain (UCLouvain) Brussels Belgium

3. Neuromusculoskeletal Lab (NMSK), Secteur des Sciences de la Santé, Institut de Recherche Expérimentale et Clinique Université Catholique de Louvain (UCLouvain) Brussels Belgium

4. Research Group MOVANT Department of Rehabilitation Sciences and Physiotherapy (REVAKI) University of Antwerp Wilrijk Belgium

5. Pain in Motion, International Research Group

6. Faculté des Sciences de la Motricité Université Catholique de Louvain (UCLouvain) Louvain‐la‐Neuve Belgium

7. Department of Rehabilitation Sciences Ghent University Ghent Belgium

8. Hemostasis and Thrombosis Unit Division of Pediatric Hematology University Hospital Antwerp Antwerp Belgium

9. Institute of Neuroscience Université catholique de Louvain Louvain‐la‐Neuve Belgium

10. Arsalis SRL Glabais Belgium

Funder

Pfizer

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/hae.14705

Reference40 articles.

1. Hemophilia trials in the twenty-first century: Defining patient important outcomes

2. WFH Guidelines for the Management of Hemophilia, 3rd edition

3. The international classification of functioning, disability and health;WHO;World Heal Organ.,2001

4. Functional Independence Score in Haemophilia: a new performance-based instrument to measure disability

5. Functional consequences of haemophilia in adults: the development of the Haemophilia Activities List

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1. Outcome measures in hemophilia: current and future perspectives;Expert Review of Hematology;2024-06-19

2. Reliability and construct validity of the ACTIVLIM‐Hemo and Haemophilia Activities List (HAL) questionnaires in individuals with haemophilia;Haemophilia;2024-02-20

3. Building a haemophilia‐specific navigator in Epic® Electronic Health Records: Single‐centre preliminary experience;Haemophilia;2023-08-30