Communication of results and disclosure of incidental findings in longitudinal paediatric research
Author:
Affiliation:
1. Charité - Universitätsmedizin Berlin; Berlin; Germany
2. Inserm, U 1018, Centre for Research in Epidemiology and Population Health CESP; Paris; France
Publisher
Wiley
Subject
Immunology,Immunology and Allergy,Pediatrics, Perinatology, and Child Health
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1111/pai.12087/fullpdf
Reference27 articles.
1. Pooling birth cohorts in allergy and asthma: European Union funded initiatives. A MeDALL, CHICOS, ENRIECO, GA2LEN joint paper;Bousquet;Int Arch Allergy Immunol,2012
2. MeDALL (Mechanisms of the Development of ALLergy): An integrated approach from phenotypes to system medicine;Bousquet;Allergy,2011
3. United Nations Convention on the Rights of the Child, 20 November 1989 http://www2.ohchr.org/english/law/crc.htm
4. Council of Europe Additional Protocol to the Convention on Human Rights and Biomedicine concerning Biomedical Research, Strasbourg, January 25th, 2005 http://www.unesco.org/new/en/social-and-human-sciences/themes/bioethics/bioethics-and-human-rights/
5. The Organisation for Economic Co-operation and Development (OECD) Guidelines for Human Biobanks and Genetic Research Databases 2009, Part I, Guideline 4.14 http://www.oecd.org/dataoecd/41/47/44054609.pdf
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