Experiences of family members when accompanying patients in intensive care units: A qualitative study

Abstract

AbstractBackgroundFamily members of Intensive Care Unit (ICU) patients encounter numerous challenges while providing companionship to their hospitalized loved ones.AimThis study aims to explore the experiences of family members with loved ones hospitalized in ICUs.Study designQualitative research was conducted using a content analysis approach. Ten family members of ICU patients were recruited using purposive sampling. Data were collected through semi‐structured, in‐depth interviews and analysed following Graneheim and Lundman's suggested steps.FindingsAnalysis of interviews with ten family members of ICU patients revealed a theme of “challenging companionship on an obscure path,” encompassing four categories (1–4) and nine subcategories (a, b and c). These included (1) the interplay between the patient and the family: a. family affected by the patient's condition; b. patient affected by the family's condition; (2) mixed emotions of apprehension and anticipation regarding ICU admission: a. fear of ICU hospitalization; b. hope for ICU hospitalization; (3) unaddressed needs and concerns: a. pressure from the ICU's visiting limitations; b. lack of a resting room to settle; c. vague information about the patient's condition; (4) two‐way care suffering for families a. direct suffering associated with companionship; b. indirect suffering while observing the patients' suffering.ConclusionsFamilies of ICU patients encounter various challenges, revealing the complex interplay of emotions, needs and challenges within the ICU. This highlights the intricate dynamics in this critical health care environment.Relevance to Clinical PracticeA holistic and empathetic approach in clinical practice is crucial in ICU care, particularly during the challenging journey patients and their families undergo in this critical setting. Health care systems and providers should adapt ICU rules to address evolving needs, alleviate concerns and enhance the overall family experience during their loved one's hospitalization in the ICU.