Development of a supportive care framework for breast cancer survivor's unmet needs: A modified Delphi study

Author:

Dai Qian12,Liu Xiangyu1ORCID,Xu Xianghua1,Fu Yulu3,She Zhengdi2,Huang Yuansi2,Xia Yimin1,Chen Yongyi1,Cheng Andy S. K.4,Feuerstein Michael15

Affiliation:

1. Hunan Cancer Hospital/The Affiliated Cancer Hospital of Xiangya School of Medicine Central South University Changsha China

2. School of Nursing Hunan University of Chinese Medicine Changsha China

3. Department of Hematology, Xiangya Third Hospital Central South University Changsha China

4. Department of Rehabilitation Sciences The Hong Kong Polytechnic University Kowloon Hong Kong China

5. Cancer Survivorship Gaithersburg Maryland USA

Abstract

AbstractAimTo establish a supportive care framework for addressing unmet needs among breast cancer survivors, providing practical guidance for healthcare providers to assess and manage these needs, ultimately enhancing the health outcomes and quality of life of breast cancer survivors.DesignWe conducted a two‐round Delphi survey to gather expert opinions regarding the unmet needs supportive care framework for breast cancer survivors.MethodsInitial framework identification and inquiry questionnaire creation was achieved via literature search and expert group discussions, which included 15 experts from nursing practice, clinical medicine, nursing management and nursing education was conducted using a Delphi survey. To establish consensus, a two‐round Delphi poll was done, using criteria based on the mean (≥4.0), coefficient of variation (CV < 0.25) and percentage for entire score (≥20%).ResultsExperts reached a consensus, leading to six care modules, and 28 care entries: Tumour Detection Support (three care entries), Management of Complications of Antitumor Therapy (seven care entries), Healthy Lifestyle Management (five care entries), Sexual and Fertility Support (four care entries), Psychosocial Support (four care entries) and Resource and Linkage Support (five care entries).ConclusionTo address breast cancer survivors' unmet needs, a supportive framework was developed to actively enhance their health outcomes. However, further refinement and feasibility testing using mobile devices or artificial intelligence are required.Implications for the Profession and Patient CareThis pioneering framework prioritises addressing unmet needs and equips healthcare providers to assess and manage these needs effectively, facilitating the implementation of programs aimed at improving the well‐being of breast cancer survivors.Reporting MethodThis study was guided by a modified guideline for the Conducting and Reporting of Delphi Studies (CREDES) (Palliative Medicine, 31(8), 684, 2017).Patient or Public ContributionNo Patient or Public Contribution.Trial and protocol registrationThe Delphi study methodology does not require registration.

Publisher

Wiley

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