1. Department of Clinical Genetics; Odense University Hospital; Odense Denmark
2. Institute of Clinical Research; University of Southern Denmark; Odense Denmark
3. Department of Otorhinolaryngology Head and Neck Surgery, HHT-Center; Odense Denmark
4. Department of Surgery; Odense University Hospital; Odense Denmark
5. Department of Clinical Genetics; Vejle Hospital, Lillebaelt Hospital; Vejle Denmark
6. Institute of Regional Health Research; University of Southern Denmark; Odense Denmark
7. Department of Clinical Genetics; Aarhus University Hospital; Aarhus Denmark
8. Institute of Clinical Medicine; Aarhus University; Aarhus Denmark
9. Department of Clinical Genetics; Copenhagen University Hospital; Rigshospitalet Denmark