1. Centre for Outcomes and Experience Research in Children's Health, Illness and Disability (ORCHID) Great Ormond Street Hospital for Children NHS Foundation Trust London UK
2. School of Healthcare, Faculty of Medicine and Health University of Leeds Leeds UK
3. Department of Nursing and Midwifery Sheffield Hallam University Sheffield UK
4. Division of Nursing, Midwifery and Social Work, School of Health Sciences University of Manchester Manchester UK