The impact of psychosocial determinants on caregivers’ burden of children with haemophilia (results of the BBC study)-Reference-Cited by-同舟云学术

The impact of psychosocial determinants on caregivers’ burden of children with haemophilia (results of the BBC study)

Published:2019-04-11 Issue:3 Volume:25 Page:424-432
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

von Mackensen Sylvia¹^ORCID,Myrin Westesson Linda²,Kavakli Kaan³^ORCID,Klukowska Anna⁴,Escuriola Carmen⁵,Uitslager Nanda⁶,Santoro Cristina⁷^ORCID,Holland Mike⁸,Khair Kate⁹^ORCID

Affiliation:

1. Department of Medical Psychology University Medical Center Hamburg‐Eppendorf Hamburg Germany

2. Department of Medicine/Haematology and Coagulation Disorders, Coagulation Centre Sahlgrenska University Hospital Gothenburg Sweden

3. Ege Haemophilia Centre Izmir Turkey

4. Department of Paediatrics, Haematology Oncology Warsaw Medical University Warsaw Poland

5. Haemophilia Centre Rhein Main (HZRM) Mörfelden‐Walldorf Germany

6. Division of Internal Medicine and Dermatology, Van Creveldkliniek University Medical Center Utrecht Utrecht The Netherlands

7. Haemophilia Centre of La Sapienza University Rome Italy

8. Haemnet London UK

9. Centre for Outcomes and Experience Research in Childhood Health Illness and Disability (ORCHID) Great Ormond Street Hospital for Children NHS Trust London UK

Funder

Baxalta

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/hae.13684

Reference34 articles.

1. Health status and health-related quality of life of children with haemophilia from six West European countries

2. The social burden and quality of life of patients with haemophilia in Italy;Kodra Y;Blood Transfus,2014

3. Understanding the experience of caring for children with haemophilia: cross-sectional study of caregivers in the United States

4. Caregiver burden in haemophilia: results from a single UK centre

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