Parents' experiences on handling paediatric anticancer drugs at home after an educational intervention

Author:

Akkawi El Edelbi Ranaa12ORCID,Eksborg Staffan12,Kreicbergs Ulrika13,Lövgren Malin34,Ekman Jennie2,Lindemalm Synnöve25

Affiliation:

1. Department of Women's and Children's Health, Childhood Cancer Research Unit Karolinska Institutet Stockholm Sweden

2. Division of Pediatrics, Astrid Lindgren Children's Hospital Karolinska University Hospital Stockholm Sweden

3. Department of Health Care Sciences, Palliative Research Centre Marie Cederschiöld University Stockholm Sweden

4. Advanced Pediatric Home Care, Astrid Lindgren Children's Hospital Karolinska University Hospital Stockholm Sweden

5. Department of Clinical Sciences, Intervention and Technology (CLINTEC) Karolinska Institutet Stockholm Sweden

Abstract

AbstractBackgroundThe shift of treatment of paediatric cancer patients to include more care at home puts a lot of pressure on health care professionals (HCPs) to prepare and train parents on safe and correct drug handling at home. Parents must take in and understand the information presented to them while coping with their own fear related to their child's cancer diagnosis. In Sweden, parents are expected to handle and manipulate oral anticancer drugs (OADs) in the home setting. There is however a lack of a standardized method to inform and educate parents on how to handle OADs in a correct way at home.AimTo describe parents' experiences of handling OADs at home after participating in an educational intervention.MethodEducational intervention in the present study aimed to improve parents' knowledge in key concepts that is, handling OADs at home by using information presented in different forms. Fifteen parents to 12 children with cancer were recruited from a paediatric oncology ward in Sweden to participate in an interview. The interviews were transcribed verbatim and subjected to qualitative content analysis.ResultsParents' experiences are presented in categories: Relieved stress, Awareness of own exposure, Facilitated my everyday life, Parents need continued support individually. The educational intervention resulted in both positive and negative feelings, increased awareness of drug exposure and correct drug handling at home. Practical training and information presented in different ways facilitated the process of drug handling. To handle the drug correctly at home parents requested to be trained and informed in the beginning of their child's oral drug treatment. In addition, parents requested to be individually approached by HCP to get answers to questions and concerns.ConclusionsThis educational intervention study shows promising results for the method used by HCPs to inform and educate parents on complicated topics such as handling OADs at home.

Publisher

Wiley

Reference38 articles.

1. Predictors of Stress of Parents of a Child with Cancer: A Jordanian Perspective

2. The Needs of Parents of Children Suffering from Cancer—Continuation of Research

3. LähteenmäkiP. Årsrapport 2023 Svenska Barncancerregistret.2022.

4. National Board of Health and Welfare (Socialstyrelsen). Cancer i siffror. Socialstyrelsen article no. 2018‐6‐10;2018. Accessed January 8 2024. https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/statistik/2018-6-10.pdf

5. Experiences of Parents With Caring for Their Child After a Cancer Diagnosis

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