1. Palliative and Hospice Medicine Department Shupyk National Healthcare University of Ukraine Kyiv Ukraine
2. Mobile Ambulatory Brigade of Palliative Care for Children Kyiv Ukraine
3. Laboratory of Inherited Neuro‐Muscular Pathology of the State Enterprise “Institute of Neurology, Psychiatry and Narcology of the National Academy of Medical Sciences of Ukraine” Kharkiv Ukraine
4. Department of Neonatology Shupyk National Healthcare University of Ukraine Kyiv Ukraine
5. Physical Therapy Kyiv Ukraine
6. Educational Centre of Professional Education of Medical Staff Medical Clinics Verde Kyiv Ukraine
7. Department of Palliative Care Hippocrates Clinic Kharkiv Ukraine
8. Kharkiv Regional Children’s Hospital Kharkiv Ukraine
9. Intensive Care Unit National Children’s Specialized Hospital Ohmatdyt Kyiv Ukraine
10. Odesa Children’s Hospital Odesa Ukraine
11. Department of Anesthesia and Intensive Care Unit Kirovograd Regional Children’s Clinical Hospital Kropyvnytskyi Ukraine
12. Centre de Référence Neuromusculaire Department of Neurology, Cliniques Universitaires de Bruxelles, Hôpital Erasme Université libre de Bruxelles (ULB) Brussels Belgium