Perception of impact of Dravet syndrome on children and caregivers in multiple countries: looking beyond seizures

Author:

Nabbout Rima1ORCID,Auvin Stephane2,Chiron Catherine1,Thiele Elizabeth3,Cross Helen4,Scheffer Ingrid E56ORCID,Schneider Amy L5,Guerrini Renzo7,Williamson Nicola8ORCID,Irwin John,Mistry Arun,Grimes Rebecca,Bennett Bryan,

Affiliation:

1. Reference Centre for Rare Epilepsies Necker‐Enfants Malades Inserm U1163 Paris France

2. Hôpital Robert Debré APHP Inserm U1141 Paris France

3. Herscot Center for Tuberous Sclerosis Complex Massachusetts General Hospital Boston MA USA

4. Great Ormond Street Institute of Child Health University College London London UK

5. Departments of Medicine and Paediatrics University of Melbourne Melbourne Victoria Australia

6. Florey and Murdoch Children's Research Institute Royal Children's Hospital Melbourne Victoria Australia

7. The Meyer Children's Hospital University of Florence Florence Italy

8. PCO Adelphi Values Ltd Bollington UK

Funder

Zogenix International Ltd

Publisher

Wiley

Subject

Neurology (clinical),Developmental Neuroscience,Pediatrics, Perinatology and Child Health

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