1. Reference Centre for Rare Epilepsies Necker‐Enfants Malades Inserm U1163 Paris France
2. Hôpital Robert Debré APHP Inserm U1141 Paris France
3. Herscot Center for Tuberous Sclerosis Complex Massachusetts General Hospital Boston MA USA
4. Great Ormond Street Institute of Child Health University College London London UK
5. Departments of Medicine and Paediatrics University of Melbourne Melbourne Victoria Australia
6. Florey and Murdoch Children's Research Institute Royal Children's Hospital Melbourne Victoria Australia
7. The Meyer Children's Hospital University of Florence Florence Italy
8. PCO Adelphi Values Ltd Bollington UK