Disclosure and plan of care at end of life: Perspectives of people with intellectual disabilities and families in Ireland
Author:
Affiliation:
1. School of Nursing and Midwifery Medical Biology Centre Queen's University Belfast Belfast UK
2. School of Nursing, Psychotherapy and Community Health Dublin City University Dublin Ireland
Publisher
Wiley
Subject
Pediatrics,Pshychiatric Mental Health
Link
https://onlinelibrary.wiley.com/doi/pdf/10.1111/bld.12339
Reference31 articles.
1. Communication between healthcare professionals and relatives of patients approaching the end-of-life: A systematic review of qualitative evidence
2. Training needs of nurses and social workers in the end-of-life care for people with intellectual disabilities: A national survey
3. They know!—Do they? A qualitative study of residents and relatives views on advance care planning, end-of-life care, and decision-making in nursing homes
4. The effects of advance care planning on end-of-life care: A systematic review
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1. Perceived barriers and facilitators to good end of life care: Focusing on people with intellectual disabilities;Journal of Applied Research in Intellectual Disabilities;2023-12-14
2. Qualitative methodological approaches involving participants with intellectual disabilities: Scoping review of literature exploring death and dying;Journal of Applied Research in Intellectual Disabilities;2023-06-14
3. Challenges and opportunities for improvement when people with an intellectual disability or serious mental illness also need palliative care: A qualitative meta-ethnography;Palliative Medicine;2023-06-09
4. Preserving familiarity: the care needs of people with intellectual disabilities at the end of life;Learning Disability Practice;2022-08-11
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