Affiliation:
1. Department of Public Health and Epidemiology RCSI University of Medicine and Health Sciences Dublin Ireland
2. Central Remedial Clinic Dublin Ireland
3. School of Nursing and Midwifery Queen's University Belfast Belfast UK
4. UCD IRIS Centre, School of Nursing, Midwifery and Health Systems University College Dublin Dublin Ireland
5. Institute of Psychiatry, Psychology & Neuroscience King's College London London UK
6. College of Health, Medicine and Life Sciences Brunel University London London UK
Abstract
AbstractAimTo explore the factors that influence the process of transitioning from child to adult services in Ireland among young people with cerebral palsy, their parents, and service providers.MethodThis study followed a qualitative descriptive approach. Semi‐structured interviews were conducted with 54 participants, including young people with cerebral palsy aged 16 to 22 years (n = 13), their parents (n = 14), and service providers (n = 27). Data were analysed using the Framework Method. Findings were categorized using an ecological model across four levels: individual, microsystem, mesosystem, and exosystem.ResultsLimited awareness, preparation, and access to information hindered successful transition. Microsystem factors such as family knowledge, readiness, resilience, and health professional expertise influenced transition experience. Mesosystem factors encompassed provider–family interaction, interprofessional partnerships, and interagency collaboration between child and adult services. Exosystem factors included inadequate availability and distribution of adult services, limited referral options, coordination challenges, absence of transition policies, staffing issues, and funding allocation challenges.InterpretationTransition is influenced by diverse factors at multiple ecological levels, including interactions within families, between health professionals, and larger systemic factors. Given the complexity of transition, a comprehensive multi‐level response is required, taking into account the interactions among individuals, services, and systems.
Subject
Neurology (clinical),Developmental Neuroscience,Pediatrics, Perinatology and Child Health
Cited by
1 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献