A new hemophilia carrier nomenclature to define hemophilia in women and girls: Communication from the SSC of the ISTH-Reference-Cited by-同舟云学术

A new hemophilia carrier nomenclature to define hemophilia in women and girls: Communication from the SSC of the ISTH

Published:2021-07-29 Issue:8 Volume:19 Page:1883-1887
ISSN:1538-7933
Container-title:Journal of Thrombosis and Haemostasis
language:en
Short-container-title:J. Thromb. Haemost.

Author:

Galen Karin P. M.¹^ORCID,d’Oiron Roseline²,James Paula³,Abdul‐Kadir Rezan⁴,Kouides Peter A.⁵⁶,Kulkarni Roshni⁷,Mahlangu Johnny N.⁸,Othman Maha⁹^ORCID,Peyvandi Flora¹⁰¹¹,Rotellini Dawn¹²,Winikoff Rochelle¹³,Sidonio Robert F.¹⁴^ORCID

Affiliation:

1. Van Creveldkliniek University Medical Center UtrechtUtrecht University Utrecht the Netherlands

2. Centre de Référence de l’Hémophilie et des Maladies Hémorragiques Constitutionnelles APHP Paris Saclay ‐ Hôpital Bicêtre and Inserm U 1176 Le Kremlin Bicêtre France

3. Department of Medicine Queen’s University Kingston Ontario Canada

4. Department of Obstetrics and Gynaecology and Katharine Dormandy Haemophilia and Thrombosis Unit The Royal Free Foundation Hospital and Institute for Women’s HealthUniversity College London London UK

5. University of Rochester Rochester New York USA

6. The Mary M. Gooley Hemophilia Center Rochester New York USA

7. Michigan State University East Lansing Michigan USA

8. Faculty of Health Sciences University of the Witwatersrand Johannesburg South Africa

9. School of Medicine Queen’s University, and School of Baccalaureate NursingSt. Lawrence College Kingston Ontario Canada

10. Fondazione IRCCS Ca’ Granda Ospedale Maggiore PoliclinicoAngelo Bianchi Bonomi Hemophilia and Thrombosis Center Milan Italy

11. Department of Pathophysiology and Transplantation Università degli Studi di Milano Milan Italy

12. National Hemophilia Foundation Gibsonia Pennsylvania USA

13. Department of Pediatric Service of Hematology Sainte‐Justine Hospital Montreal Quebec Canada

14. Aflac Cancer and Blood Disorders Emory University Decatur Georgia USA

Publisher

Wiley

Subject

Hematology

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/jth.15397

Reference31 articles.

1. Bleeding in carriers of hemophilia

2. WFH Guidelines for the Management of Hemophilia, 3rd edition

3. A cross-sectional study of bleeding phenotype in haemophilia A carriers

4. Haemophilia A carriers experience reduced health-related quality of life

5. Association between bleeding tendency and health-related quality of life in carriers of moderate and severe haemophilia

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