Examining variability in Naturalistic Developmental Behavioral Intervention strategy use in caregivers of children with autism spectrum disorders

Author:

Brown Hallie1,Swain Deanna2,Kim Hye Won3,Rogers Sally4,Estes Annette5,Kasari Connie6,Lord Catherine6,Kim So Hyun3ORCID

Affiliation:

1. Department of Psychiatry Weill Cornell Medicine New York NY USA

2. Department of Pediatrics University of Colorado Medicine Aurora CO USA

3. School of Psychology Korea University Seoul South Korea

4. MIND Institute, University of California, Davis Sacramento CA USA

5. University of Washington Seattle WA USA

6. Department of Psychiatry, Semel Institute of Neuroscience and Human Behavior University of California Los Angeles Los Angeles CA USA

Abstract

BackgroundNaturalistic Developmental Behavioral Interventions (NDBIs) for young children with autism spectrum disorder commonly involve caregiver‐mediated approaches. However, to date, there is limited research on how caregivers' skills change, and, in turn, impact child outcomes.MethodsWe evaluated the NDBI strategy use of 191 caregivers prior to participation in NDBIs (or control groups) across multiple randomized controlled trials, using the Measure of NDBI Strategy Implementation, Caregiver Change (MONSI‐CC). Clustering analyses were used to examine caregiver variability in NDBI strategy use at intervention entry. Generalized Linear Mixed Models were used to examine changes in caregiver strategy use over the course of intervention and its impact on changes in children's social communication.ResultsUsing clustering analysis, we found that caregivers' baseline skills fit four profiles: limited, emerging, variable, and consistent/high, with few demographic factors distinguishing these groups. Caregivers starting with limited or emerging skills improved in their strategy use with intervention. Caregivers starting with more skills (consistent/high or variable) maintained higher skills over intervention. Children of caregivers in these groups who received target NDBIs improved in their social communication skills.ConclusionsResults suggested that caregiver skills improve through participation in NDBIs and may directly contribute to their children's outcomes, although more research on mediating factors is needed. Individualized approaches for caregivers and their children starting with differing skill profiles at intervention entry may be warranted.

Funder

Maternal and Child Health Bureau

National Institute of Mental Health

Simons Foundation Autism Research Initiative

National Research Foundation of Korea

Publisher

Wiley

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