Psychological well‐being in persons with dementia: The role of caregiver expressed emotion

Author:

Safavi Roxanne1,Wearden Alison1,Berry Katherine12ORCID

Affiliation:

1. Division of Psychology and Mental Health, School of Health Sciences University of Manchester Manchester UK

2. Greater Manchester Mental Health NHS Foundation Trust Manchester UK

Abstract

AbstractObjectivesDementia is a growing health concern. Persons with dementia experience higher levels of anxiety and depression, which correlates with poorer quality of life, disability and hospitalization. This is one of the few studies to use a longitudinal design to assess the impact of expressed emotion (EE) on well‐being in dementia over time.MethodsSixty‐one people with dementia and their main informal caregiver were recruited from memory services. Caregiver EE was coded from a Camberwell Family Interview conducted at time one. Person with dementia's outcome measures (quality of life, depression and anxiety) were collected at time one and at 6‐months follow‐up.ResultsCaregiver high EE was associated with higher levels of depression in people with dementia and greater anxiety at follow‐up. Emotional over involvement predicted greater anxiety and critical comments predicted greater depression. Low EE appeared to have a protective effect on well‐being in people with dementia. People with dementia with low EE caregivers experienced a small reduction in depression and anxiety over time, whereas those with high‐EE caregivers maintained baseline levels of depression and anxiety.ConclusionsCaregiver high EE is associated with poorer psychological outcomes for people with dementia over time. Psychological therapies, such as cognitive behavioural therapy informed family interventions should be used to reduce high EE within carer and person with dementia relationships.

Publisher

Wiley

Subject

Clinical Psychology,General Medicine

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