“Diabetes is really simple on paper, but really complicated when you actually have it”: Understanding the daily stressors of adolescents living with Type 1 diabetes

Author:

Rechenberg Kaitlyn1,Geiss Carley2,Koerner Rebecca1ORCID,Ríos Nicole1,Menon Usha1

Affiliation:

1. College of Nursing University of South Florida Tampa Florida USA

2. Moffitt Cancer Center Tampa Florida USA

Abstract

AbstractPurposeThis study aims to explore the daily stressors experienced by adolescents with Type 1 diabetes (T1D) and the perceived impact of those stressors on their self‐management and psychological well‐being.Design and MethodsWe conducted semistructured in‐depth telephone interviews using a qualitative descriptive approach with 20 adolescents aged 14–17 years with T1D and analyzed subsequent data using thematic analysis.ResultsParticipants who were non‐Hispanic white made up 85% of the sample, 75% identified as female and mean age was 15 years. The study identified two key themes: “the everyday stress of living with diabetes” and “managing stress and supporting psychological well‐being.” Participants described heightened mental load, the impact of daily activities, stress associated with public diabetes management, and added stress due to COVID‐19. Primary mitigation techniques included family support, peer support networks, activity engagement, and personal acceptance of their condition.Practice ImplicationsWe found that there is a compound effect that occurs with balancing daily disease management with normative activities of daily living. These data will help guide the design of new interventions and tailoring of existing interventions. Future intervention development may include physical exercise, mindfulness training, and stress reducing techniques.

Funder

National Institute of Nursing Research

Publisher

Wiley

Reference25 articles.

1. Using thematic analysis in psychology

2. Stigma and Its Association With Glycemic Control and Hypoglycemia in Adolescents and Young Adults With Type 1 Diabetes: Cross-Sectional Study

3. COVID-19 in people living with diabetes: An international consensus

4. Centers for Disease Control and Prevention. (2023a September 7).Just diagnosed with type 1 diabetes.https://www.cdc.gov/diabetes/basics/diabetes-type-1-diagnosis.html

5. Centers for Disease Control and Prevention. (2023b September 5).What is type 1 diabetes?https://www.cdc.gov/diabetes/basics/what-is-type-1-diabetes.html

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