Ethical dilemmas about orphan drugs for orphan diseases
Author:
Affiliation:
1. Children's Hospital at Westmead; Sydney New South Wales Australia
Publisher
Wiley
Subject
Pediatrics, Perinatology and Child Health
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1111/jpc.12531/fullpdf
Reference5 articles.
1. Terminal complement inhibitor eculizumab in atypical hemolytic-uremic syndrome;Legendre;N. Engl. J. Med.,2013
2. Pricing for orphan drugs. Will the market bear what society cannot?;O'Sullivan;JAMA,2013
3. Orphan drugs for rare diseases. Is it time to revisit their special market access status?;Simeons;Drugs,2012
4. The problem with rescue medicine;Jecker;J. Med. Philos.,2013
5. Public healthcare resource allocation and the Rule of Rescue;Cookson;J. Med. Ethics,2008
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2. Orphan drugs: trends and issues in drug development;Journal of Basic and Clinical Physiology and Pharmacology;2018-09-25
3. Interactions with the mainstream media;Journal of Paediatrics and Child Health;2017-01
4. Individualized therapy in patients with Fabry disease: is it a feasible strategy for rare diseases?;Expert Opinion on Orphan Drugs;2016-11-08
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