Patient-reported outcome measures for young people with developmental disabilities: incorporation of design features to reduce cognitive demands

Author:

Schwartz Ariel E1ORCID,Kramer Jessica M2,Longo Angela L2

Affiliation:

1. PhD Program in Rehabilitation Sciences; Boston University; Boston MA USA

2. Department of Occupational Therapy; Boston University; Boston MA USA

Funder

Comprehensive Opportunities in Rehabilitation Research Training (CORRT)

National Center Medical Rehabilitation Research

National Institute of Child Health and Human Development

National Institutes of Health

Publisher

Wiley

Subject

Clinical Neurology,Developmental Neuroscience,Pediatrics, Perinatology, and Child Health

Reference37 articles.

1. Developmental Disabilities Assistance and Bill of Rights Act of 2000 2000

2. The PCORI perspective on patient-centered outcomes research;Frank;J Am Med Assoc,2014

3. Considerations for developing interfaces for collecting patient-reported outcomes that allow the inclusion of individuals with disabilities;Harniss;Med Care,2007

4. Food and Drug Administration Guidance for Industry: Patient-reported Outcome Measures: Use in Medical Product Development to Support Labeling Claims 2009 www.fda.gov/downloads/Drugs/GuidanceComplianceRegulatoryInformation/Guidances/UCM193282.pdf

5. Invisible access needs of people with intellectual disabilities: a conceptual model of practice;Yalon-Chamovitz;Intellect Dev Disabil,2009

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