1. Institute of Health & Society Newcastle University Newcastle upon Tyne UK
2. Centre for Maternal, Fetal and Infant Research Institute of Nursing and Health Research Ulster University Ulster UK
3. Medical University of Graz Graz Austria
4. Provinciaal Instituut voor Hygiëne Antwerp Belgium
5. Eurocat Hainaut –Namur Centre for Human Genetics Institut de Pathologie et de Génétique, IPG Charleroi Belgium
6. Paediatric Department Hospital Lillebaelt Kolding Denmark
7. Health Intelligence Health Service Executive Dublin Ireland
8. Public Health Department HSE Southeast area Lacken Kilkenny Ireland
9. Department of Public Health Health Service Executive South Cork Ireland
10. Department of Health Information and Research Guardamangia Malta
11. Department of Genetics University Medical Center Groningen University of Groningen Groningen The Netherlands
12. Department of Global Public Health and Primary Care University of Bergen Bergen Norway
13. Public Health Division of Gipuzkoa BioDonostia Research Institute San Sebastian Spain
14. Rare Diseases Research Unit Foundation for the Promotion of Health and Biomedical Research of the Valencian Region Valencia Spain
15. National Perinatal Epidemiology Unit Nuffield Department of Population Health University of Oxford Oxford UK
16. Department Health Sciences University of Leicester Leicester UK
17. Congenital Anomaly Register and Information Service for Wales Public Health Wales Swansea UK
18. Faculty of Medicine University of Southampton and Wessex Clinical Genetics Service Southampton UK
19. OMNI‐Net Ukraine and Khmelnytsky Children Hospital Khmelnytsky Ukraine
20. INSERM U1153 (Obstetrical, Perinatal and Pediatric Epidemiology Research Team, Center for Biostatistics and Epidemiology) Maternité Port Royal Paris France