Eliciting patient past experiences of healthcare discrimination as a potential pathway to reduce health disparities: A qualitative study of primary care staff

Author:

Cortés Dharma E.1ORCID,Progovac Ana M.1ORCID,Lu Frederick2ORCID,Lee Esther3,Tran Nathaniel M.4ORCID,Moyer Margo A.5,Odayar Varshini6,Rodgers Caryn R. R.7,Adams Leslie8,Chambers Valeria6,Delman Jonathan9,Delman Deborah10,de Castro Selma11,Sánchez Román María José12,Kaushal Natasha A.13,Creedon Timothy B.14ORCID,Sonik Rajan A.15,Rodriguez Quinerly Catherine16,Nakash Ora17,Moradi Afsaneh18,Abolaban Heba19,Flomenhoft Tali20,Nabisere Ruth19,Mann Ziva21,Shu‐Yeu Hou Sherry22,Shaikh Farah N.19,Flores Michael W.1ORCID,Jordan Dierdre19,Carson Nicholas1,Carle Adam C.23,Cook Benjamin Lé1,McCormick Danny19

Affiliation:

1. Harvard Medical School, Boston, Massachusetts and Health Equity Research Lab Cambridge Health Alliance Cambridge Massachusetts USA

2. Warren Alpert Medical School of Brown University Brown University Health Providence Rhode Island USA

3. University of Michigan, School of Public Health Ann Arbor Michigan USA

4. University of Illinois Chicago Chicago Illinois USA

5. John Snow Institute Boston Massachusetts USA

6. Health Equity Research Lab Cambridge Health Alliance Cambridge Massachusetts USA

7. Department of Pediatrics and Department of Psychiatry & Behavioral Sciences Albert Einstein College of Medicine Bronx New York USA

8. Johns Hopkins Bloomberg School of Public Health Baltimore Maryland USA

9. UMass Chan Medical School Worcester Massachusetts USA

10. Operation ABLE Boston Massachusetts USA

11. Just A Start Cambridge Massachusetts USA

12. College of Public Health University of Nebraska Medical Center Omaha Nebraska USA

13. ECOG‐ACRIN Cancer Research Group Philadelphia Pennsylvania USA

14. U.S. Department of Health and Human Services Washington DC USA

15. Brandeis University Waltham Massachusetts USA

16. Massachusetts Department of Mental Health Boston Massachusetts USA

17. Smith College School for Social Work Northampton Massachusetts USA

18. Blair Athol Medical Clinic Adelaide South Australia Australia

19. Cambridge Health Alliance Cambridge Massachusetts USA

20. Equip Carlsbad California USA

21. Ascent Leadership Networks New York New York USA

22. Public Policy and Population Health Observatory McGill University Montreal Quebec Canada

23. James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center University of Cincinnati College of Medicine, University of Cincinnati College of Arts and Sciences Cincinnati Ohio USA

Abstract

AbstractObjectiveTo understand whether and how primary care providers and staff elicit patients' past experiences of healthcare discrimination when providing care.Data Sources/Study SettingTwenty qualitative semi‐structured interviews were conducted with healthcare staff in primary care roles to inform future interventions to integrate data about past experiences of healthcare discrimination into clinical care.Study DesignQualitative study.Data Collection/Extraction MethodsData were collected via semi‐structured qualitative interviews between December 2018 and January 2019, with health care staff in primary care roles at a hospital‐based clinic within an urban safety‐net health system that serves a patient population with significant racial, ethnic, and linguistic diversity.Principal FindingsProviders did not routinely, or in a structured way, elicit information about past experiences of healthcare discrimination. Some providers believed that information about healthcare discrimination experiences could allow them to be more aware of and responsive to their patients' needs and to establish more trusting relationships. Others did not deem it appropriate or useful to elicit such information and were concerned about challenges in collecting and effectively using such data.ConclusionsWhile providers see value in eliciting past experiences of discrimination, directly and systematically discussing such experiences with patients during a primary care encounter is challenging for them. Collecting this information in primary care settings will likely require implementation of multilevel systematic data collection strategies. Findings presented here can help identify clinic‐level opportunities to do so.

Funder

Patient-Centered Outcomes Research Institute

Publisher

Wiley

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