Clinical registries: Not yet perfect, but essential for a high‐functioning health system

Author:

Ahern Susannah1ORCID

Affiliation:

1. School of Public Health and Preventive Medicine Monash University Melbourne Victoria Australia

Publisher

Wiley

Subject

Pulmonary and Respiratory Medicine

Reference15 articles.

1. Quality Registries 15 June 2022. National Quality Register Sweden [accessed 2023 Jul 17]. Available from:https://skr.se/en/kvalitetsregister/omnationellakvalitetsregister.52218.html

2. Australian Commission on Safety and Quality in Health Care.Australian Register of Clinical Registries. Sydney. NSW [accessed 2023 Jul 17]. Available from:https://www.safetyandquality.gov.au/publications-and-resources/australian-register-clinical-registries

3. The importance of effective registries in pulmonary diseases and how to optimize their output

4. Cystic Fibrosis in Australia 2014. 17th Annual Report Australian Cystic Fibrosis Data Registry. 2016. Cystic Fibrosis Australia NSW [accessed 2023 Jul 17]. Available from:https://cysticfibrosis.org.au/wp-content/uploads/2023/05/2014_ACFDR-Annual-Report_Final.pdf

5. AhernS SalimiF CarusoM RuseckaiteR WarkP SchultzA et al.The ACFDR Registry Annual Report 2021. Monash University Department of Epidemiology and Preventive Medicine August 2022 Report No. 23 [accessed 2023 Jul 17]. Available from:https://cysticfibrosis.org.au/wp-content/uploads/2023/05/2021-ACFDR-Annual-Report.pdf

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