Evaluation of peer‐mediated systems navigation for ageing families of individuals with developmental disabilities
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Published:2023-03-03
Issue:5
Volume:67
Page:462-474
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ISSN:0964-2633
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Container-title:Journal of Intellectual Disability Research
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language:en
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Short-container-title:J intellect Disabil Res
Author:
Marsack‐Topolewski C.12,
Milberger S.2,
Janks E.2,
Anderson N.2,
Bray M.2,
Samuel P. S.3ORCID
Affiliation:
1. School of Social Work Eastern Michigan University Ypsilanti MI USA
2. Michigan Developmenal Disabilities Institute Wayne State University Detroit MI USA
3. Department of Health Care Sciences Wayne State University Detroit MI USA
Abstract
AbstractBackgroundAs individuals with intellectual and developmental disabilities (I/DD) age, services often diminish, with many family caregivers experiencing challenges finding and navigating services. The purpose of this study was to examine the benefits of a state‐wide family support project for ageing caregivers (50+) of adults with I/DD in accessing and using services.MethodA one‐group pre‐test–post‐test design was used to determine if participation in the MI‐OCEAN intervention grounded in the Family Quality of Life (FQOL) theory reduced ageing caregivers' (n = 82) perceptions of barriers to accessing, using and needing formal services.ResultsAfter participating in the study, there was a reduction in reported barriers to accessing services. There was also greater use and reduced need for 10 of the 23 listed formal services.ConclusionsFindings indicate that a peer‐mediated intervention grounded in FQOL theory can be beneficial in empowering ageing caregivers by reducing perceived barriers to accessing services and increasing their use of advocacy and support services.
Funder
Michigan Health Endowment Fund
Subject
Psychiatry and Mental health,Neurology (clinical),Neurology,Arts and Humanities (miscellaneous),Rehabilitation
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