1. Unit of Epidemiology of Rare diseases and Congenital anomalies, Institute of Clinical Physiology National Research Council Pisa Italy
2. Fondazione Toscana Gabriele Monasterio Pisa Italy
3. Population Health Sciences Institute, Faculty of Medical Sciences Newcastle University Newcastle upon Tyne UK
4. Population Health Research Institute, St George's University of London London UK
5. Paediatric Department Hospital Lillebaelt Kolding Denmark
6. Faculty of Life and Health Sciences Ulster University Coleraine UK
7. Public Health Division of Gipuzkoa BioDonostia Research Institute San Sebastian Spain
8. IMER Registry Department of Neuroscience and Rehabilitation University of Ferrara Ferrara Italy
9. Children's Hospital Zagreb, Centre of Excellence for Reproductive and Regenerative Medicine Medical School University of Zagreb Zagreb Croatia
10. Rare Diseases Research Unit Foundation for the Promotion of Health and Biomedical Research in the Valencian Region Valencia Spain
11. Department of Genetics, University Medical Center Groningen University of Groningen Groningen the Netherlands
12. Provincial Institute for Hygiene Antwerp Belgium
13. Malta Congenital Anomalies Registry Directorate for Health Information and Research Pieta Malta
14. THL Finnish Institute for Health and Welfare Information Services Department Helsinki Finland
15. Faculty of Medicine, Health & Life Science Swansea University Swansea UK
16. Université de Paris, CRESS‐Epopé INSERM, INRA Paris France
17. Department of Global Public Health and Primary Care University of Bergen Bergen Norway
18. Division of Mental and Physical Health Norwegian Institute of Public Health Bergen Norway
19. Imer registry Centre for Epidemiology and Clinical Research University of Ferrara and Azienda Ospedaliera Universitaria di Ferrara Ferrara Italy
20. Malformation Monitoring Centre Saxony‐Anhalt Medical Faculty Otto‐von‐Guericke‐University Magdeburg Magdeburg Germany
21. Faculty of Medicine University of Southampton and Wessex Clinical Genetics Service, Princess Anne Hospital Southampton UK
22. OMNI‐Net for Children International Charitable Fund Rivne Ukraine