Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/Chronic Fatigue Syndrome ( ME / CFS ) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study-Reference-Cited by-同舟云学术

Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/Chronic Fatigue Syndrome ( ME / CFS ) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study

Published:2019-01-10 Issue:3 Volume:22 Page:373-384
ISSN:1369-6513
Container-title:Health Expectations
language:en
Short-container-title:Health Expect

Author:

Lacerda Eliana M.¹,McDermott Clare²^ORCID,Kingdon Caroline C.¹,Butterworth Jack¹,Cliff Jacqueline M.³,Nacul Luis¹

Affiliation:

1. Clinical Research DepartmentFaculty of Infectious and Tropical DiseasesLondon School of Hygiene and Tropical Medicine London UK

2. Primary Medical CareFaculty of MedicineUniversity of Southampton Southampton UK

3. Department of Immunology and InfectionFaculty of Infectious and Tropical DiseasesLondon School of Hygiene and Tropical Medicine London UK

Funder

National Institute of Allergy and Infectious Diseases

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/hex.12857

Reference51 articles.

1. CureME.CureME; Leading research into CFS/MEhttps://cureme.lshtm.ac.uk. Accessed April 25 2018.

2. LacerdaE KingdonCW BowmanE et al.Using a participatory approach to develop and implement the UK ME/CFS Biobank2017.

3. The UK ME/CFS Biobank for biomedical research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis

4. Definitions and aetiology of myalgic encephalomyelitis: how the Canadian consensus clinical definition of myalgic encephalomyelitis works

5. The Chronic Fatigue Syndrome: A Comprehensive Approach to Its Definition and Study

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