Registries in immune thrombocytopenia (ITP) in Europe: the European Research Consortium on ITP ( <scp>ERCI</scp> ) network-Reference-Cited by-同舟云学术

Registries in immune thrombocytopenia (ITP) in Europe: the European Research Consortium on ITP ( ERCI ) network

Published:2022-03-18 Issue:5 Volume:197 Page:633-638
ISSN:0007-1048
Container-title:British Journal of Haematology
language:en
Short-container-title:Br J Haematol

Author:

Moulis Guillaume¹²^ORCID,Cooper Nichola³^ORCID,Ghanima Waleed⁴,González‐López Tomás⁵^ORCID,Kühne Thomas⁶,Lozano Maria L.⁷,Michel Marc⁸,Provan Drew⁹^ORCID,Zaja Francesco¹⁰,Aladjidi Nathalie¹¹¹²^ORCID,Christiansen Christian Fynbo¹³,Frederiksen Henrik¹⁴^ORCID,Grainger John¹⁵¹⁶,McDonald Vickie¹⁷,Robinson Susan¹⁸,Schifferli Alexandra⁶,Rodeghiero Francesco¹⁹

Affiliation:

1. Department of Internal Medicine Toulouse University Hospital Toulouse France

2. CIC 1436, Team PEPSS Toulouse University Hospital Toulouse France

3. Department of Haematology, Hammersmith Hospital Imperial College London London UK

4. Department of Hematooncology Østfol Hospital and Institute of Clinical Medicine University of Oslo Oslo Norway

5. Department of Hematology Hospital Universitario de Burgos Burgos Spain

6. Oncology/Hematology University Children's Hospital Basel Basel Switzerland

7. Hospital Universitario Morales Meseguer Centro Regional de Hemodonación Universidad de Murcia IMIB‐Arrixaca CB15/00055‐CIBERER Murcia Spain

8. Department of Internal Medicine, National Referral Center for Autoimmune Cytopenias Créteil University Hospital Créteil France

9. Department of Haematology, Barts and The London School of Medicine and Dentistry Queen Mary University of London London UK

10. DSM University of Trieste Trieste Italy

11. Pediatric Hematology University Hospital Centre d’Investigation Clinique Plurithématique CICP INSERM Bordeaux

12. Centre de Référence National des Cytopénies Auto‐Immunes de l'Enfant (CEREVANCE) Bordeaux France

13. Department of Clinical Epidemiology, Department of Clinical Medicine Aarhus University and Aarhus University Hospital Aarhus Denmark

14. Department of Haematology and Department of Clinical Research Odense University Hospital and University of Southern Denmark Odense Denmark

15. Department of Paediatric Haematology Royal Manchester Children’s Hospital Manchester UK

16. Department of Medical Sciences University of Manchester Manchester UK

17. Department of Clinical Haematology Royal London Hospital, Barts Health London UK

18. Department of Clinical Haematology Guys and St Thomas’ NHS Foundation Trust London UK

19. Hematology Project Foundation Affiliated to the Hematology Department of the San Bortolo Hospital Vicenza Italy

Publisher

Wiley

Subject

Hematology

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/bjh.18111

Reference10 articles.

1. European UnionCommittee of Experts on rare diseases. EUCERD core recommendations on rare disease patient registration and data collection2013.https://rarediseases.org/wp‐content/uploads/2015/12/EUCERD_Recommendations_RDRegistryDataCollection_adopted.pdf. Accessed 13 August 2021.

2. Immune Thrombocytopenia

3. New insights into the epidemiology of immune thrombocytopenia in adult patients: Impact for clinical practice

4. European Research Consortium on ITP. 2019.www.ercigroup.org. Accessed 13 August 2021.

5. Validation of the FACIT-fatigue subscale, selected items from FACT-thrombocytopenia, and the SF-36v2 in patients with chronic immune thrombocytopenia

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