The Danish child and parent Gait Outcomes Assessment List questionnaires were reliable and valid for cerebral palsy

Author:

Nordbye‐Nielsen Kirsten12ORCID,Maribo Thomas34,Rahbek Ole5,Narayanan Unni67,Møller‐Madsen Bjarne12

Affiliation:

1. Department of Clinical Medicine Aarhus University Aarhus Denmark

2. Department of Children's Orthopaedic Surgery Aarhus University Hospital Aarhus Denmark

3. DEFACTUM, Central Denmark Region Aarhus Denmark

4. Department of Public Health Aarhus University Aarhus Denmark

5. Aalborg University Hospital Aarhus Denmark

6. Division of Orthopaedic Surgery & Child Health Evaluative Sciences The Hospital for Sick Children Toronto Ontario Canada

7. University of Toronto Toronto Ontario Canada

Abstract

AbstractAimWe investigated the reliability and validity of the Danish child and parent versions of the Gait Outcomes Assessment List (GOAL) questionnaires for ambulatory children with cerebral palsy (CP).MethodsTranslation and cultural adaptations were performed and content validity evaluated. Participants were enrolled between 2016 and 2018 from Aarhus University Hospital, Denmark. Children and parents completed the GOAL questionnaires twice for test–retest reliability. Discriminative validity was evaluated by comparing the child and parent GOAL scores between children with Gross Motor Function Classification System (GMFCS) levels I and II. The concurrent validity of the GOAL questionnaires were investigated by comparing them with Challenge‐20, which assesses motor skills in children with CP.ResultsWe studied 59 children (57% boys) with CP and GMFCS I‐II at a mean age of 10.6 years. Test–retest intra‐class correlations were excellent for the children (0.91, 95% confidence interval (CI) 0.83–0.96) and good for the parents (0.83, 95% CI 0.67–0.91). GOAL scores decreased with increasing GMFCS (p < 0.05). Both versions correlated well. The mean children's scores were significantly (6.2/100) higher than the parents' (p < 0.001). The GOAL scores correlated positively with Challenge‐20.ConclusionThe Danish GOAL child and parent questionnaires demonstrated good reliability and content and discriminative and concurrent validity.

Funder

Aarhus Universitet

Publisher

Wiley

Subject

General Medicine,Pediatrics, Perinatology and Child Health

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