1. Marcella Niehoff School of Nursing Loyola University Chicago Chicago Illinois USA
2. Department of Psychology Loyola University Chicago Chicago Illinois USA
3. Stritch School of Medicine Loyola University Chicago Chicago Illinois USA
4. Department of Pediatrics, Division of Developmental Medicine Seattle Children's Hospital Seattle Washington USA
5. University of Washington School of Medicine Seattle Washington USA
6. Department of Internal Medicine Baylor College of Medicine Houston Texas USA
7. Spina Bifida Transition Clinic Texas Children's Hospital Houston Texas USA
8. Spina Bifida Program Children's Wisconsin Milwaukee Wisconsin USA
9. Department of Nursing Research and Evidence‐Based Practice Children's Wisconsin Milwaukee Wisconsin USA
10. Self‐Management Science Center, School of Nursing, College of Health Professions and Sciences University of Wisconsin‐Milwaukee Milwaukee Wisconsin USA