“I have to start learning how to live with becoming sick”: A scoping review of the lived experiences of people with Huntington's disease-Reference-Cited by-同舟云学术

登录注册会员服务联系我们

“I have to start learning how to live with becoming sick”: A scoping review of the lived experiences of people with Huntington's disease

Published:2021-07-13 Issue:1 Volume:101 Page:3-19
ISSN:0009-9163
Container-title:Clinical Genetics
language:en
Short-container-title:Clinical Genetics

Author:

Mahmood Saadia¹^ORCID,Law Susan²^ORCID,Bombard Yvonne³^ORCID

Affiliation:

1. Institute of Health Policy, Management and Evaluation University of Toronto Toronto Ontario Canada

2. Institute for Better Health Trillium Health Partners Mississauga Ontario Canada

3. Genomics Health Service Research Group St. Michael's Hospital ‐ Unity Health Toronto Toronto Ontario Canada

Publisher

Wiley

Subject

Genetics (clinical),Genetics

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/cge.14024

Reference48 articles.

1. Huntington's disease: a clinical review

2. Technical Standards and Guidelines for Huntington Disease Testing

3. Stuck in the Middle: Huntington’s Disease or not Huntington’s Disease?

4. Identifying gaps in knowledge: A map of the qualitative literature concerning life with a neurological condition

5. The Effect of Predictive Testing in Adult-Onset Neurodegenerative Diseases on Social and Personal Life

Cited by 6 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Shifting focus from ideality to reality: a qualitative study on how quality of life is defined by premanifest and manifest Huntington’s disease gene expansion carriers;2024-05-29

2. The lived experience of reconstructing identity in response to genetic risk of frontotemporal degeneration and amyotrophic lateral sclerosis;Journal of Genetic Counseling;2023-07-10

3. What does social cognition look like in everyday social functioning in Huntington’s disease? A protocol for a scoping review to explore and synthesise knowledge about social cognition alongside day-to-day social functioning of people with Huntington’s disease;BMJ Open;2023-07

4. Mental health symptoms among those affected by Huntington's disease: A cross‐sectional study;Brain and Behavior;2023-03-06

5. Using a Clinical Formulation to Understand Psychological Distress in People Affected by Huntington’s Disease: A Descriptive, Evidence-Based Model;Journal of Personalized Medicine;2022-07-27

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线，采集、加工和组织学术论文而形成的新型学术文献查询和分析系统，可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容，当前同舟云学术共收录了国内外主流学术期刊6万余种，收集的期刊论文及会议论文总量共计约1.5亿篇，并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询！咨询电话：010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号京ICP备18003416号-3