A survey among patients with haemophilia and inhibitors or their caregivers, seeking treatment in non‐haemophilia treatment centres

Author:

Davis Joanna A.1,Klamroth Robert2ORCID,Benchikh El Fegoun Soraya3ORCID,Habis Richard4,Moerloose Philippe5ORCID

Affiliation:

1. Miami FL USA

2. Haemophiliezentrum Klinik für Innere Medizin Vivantes Klinikum im Friedrichshain Berlin Germany

3. Global Medical Affairs Biopharma Novo Nordisk Health Care AG Zürich Switzerland

4. Psyma Group AG Rückersdorf Germany

5. Faculty of Medicine University of Geneva Geneva Switzerland

Funder

Novo Nordisk

Publisher

Wiley

Subject

Genetics (clinical),Hematology,General Medicine

Reference7 articles.

1. Guidelines for the management of hemophilia

2. Emergency department utilization by haemophilia patients in United States

3. World Federation of Hemophilia.Annual Global Survey.https://www1.wfh.org/publications/files/pdf‐1690.pdf. Accessed 2 April2019.

4. Food and Drug Administration (FDA).The voice of the patient. Available from:https://www.fda.gov/downloads/ForIndustry/UserFees/PrescriptionDrugUserFee/UCM513311.pdf. Accessed 8 October2018.

5. United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO).Emergency and out of hours care for patients with bleeding disorders – Standards of care for assessment and treatment. Available from:http://www.ukhcdo.org/wp‐content/uploads/2015/12/EmergencyCareStandardsFinalVersionJune2009‐For‐Website.pdf. Accessed 26 March2019.

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