Past, Present, and Future of Informed Consent in Pain and Genomics Research: Challenges Facing Global Medical Community

Author:

Compagnone Christian1,Schatman Michael E.2,Rauck Richard L.3,Van Zundert Jan4,Kraus Monika56,Primorac Dragan7,Williams Frances8,Allegri Massimo1,Saccani Jordi Gloria9,Fanelli Guido1,

Affiliation:

1. Department of Anesthesia, Intensive Care and Pain Therapy; University Hospital of Parma; Parma Italy

2. Foundation for Ethics in Pain Care; Bellevue Washington U.S.A.

3. Carolinas Pain Institute; Wake Forest University Baptist Health; Winston-Salem North Carolina U.S.A.

4. Department of Anesthesiology; Critical Care and Multidisciplinary Pain Center; ZOL; Genk Belgium

5. Research Unit of Molecular Epidemiology and Institute of Epidemiology II; Helmholtz Zentrum München; Munich Germany

6. German Research Center for Environmental Health; Neuherberg Germany

7. St. Catherine Specialty Hospital; Zagreb and Zabok Croatia

8. Department of Twin Research and Genetic Epidemiology; St Thomas’ Hospital; King's College London; London U.K.

9. Department of Biomedical, Biotechnological and Translational Sciences; University of Parma; Parma Italy

Funder

Seventh Framework Programme

Publisher

Wiley

Subject

Anesthesiology and Pain Medicine

Reference55 articles.

1. Some limits of informed consent;O'Neill;J Med Ethics,2003

2. Informed consent in a changing environment;Boulton;Soc Sci Med,2007

3. Empty ethics: the problem with informed consent;Corrigan;Sociol Health Illn,2003

4. Proposing modesty for informed consent;Burgess;Soc Sci Med,2007

5. Difficulties in obtaining informed consent by psychiatrists, surgeons and obstetricians/gynaecologists;Kent;Health Care Anal,1996

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2. The ethical aspects of exposome research: a systematic review;Exposome;2023-01-01

3. Time for a change: considering the rights of study participants to ownership of their personal research-grade genomic data;Convergent Science Physical Oncology;2018-12-31

4. Ethics of research for patients in pain;Current Opinion in Anaesthesiology;2017-04

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