Moving towards social inclusion: Engaging rural voices in priority setting for health

Author:

Tugendhaft Aviva1ORCID,Christofides Nicola2,Stacey Nicholas3,Kahn Kathleen4,Erzse Agnes1,Danis Marion5,Gold Marthe6,Hofman Karen1

Affiliation:

1. SAMRC/Wits Centre for Health Economics and Decision Science—PRICELESS SA School of Public Health, Faculty of Health Sciences, University of Witwatersrand Johannesburg South Africa

2. School of Public Health Faculty of Health Sciences, University of the Witwatersrand Johannesburg South Africa

3. Department of Health Policy London School of Economics London UK

4. MRC/Wits Rural Public Health and Health Transitions Research Unit—Agincourt School of Public Health, Faculty of Health Sciences, University of the Witwatersrand Johannesburg South Africa

5. Department of Bioethics National Institutes of Health Bethesda Maryland USA

6. New York Academy of Medicine New York City New York USA

Abstract

AbstractBackgroundAchieving universal health coverage (UHC) in the context of limited resources will require prioritising the most vulnerable and ensuring health policies and services are responsive to their needs. One way of addressing this is through the engagement of marginalised voices in the priority setting process. Public engagement approaches that enable group level deliberation as well as individual level preference capturing might be valuable in this regard, but there are limited examples of their practical application, and gaps in understanding their outcomes, especially with rural populations.ObjectiveTo address this gap, we implemented a modified priority setting tool (Choosing All Together—CHAT) that enables individuals and groups to make trade‐offs to demonstrate the type of health services packages that may be acceptable to a rural population. The paper presents the findings from the individual choices as compared to the group choices, as well as the differences among the individual choices using this tool.MethodsParticipants worked in groups and as individuals to allocate stickers representing the available budget to different health topics and interventions using the CHAT tool. The allocations were recorded at each stage of the study. We calculated the median and interquartile range across study participants for the topic totals. To examine differences in individual choices, we performed Wilcoxon rank sum tests.ResultsThe results show that individual interests were mostly aligned with societal ones, and there were no statistically significant differences between the individual and group choices. However, there were some statistically significant differences between individual priorities based on demographic characteristics like age.DiscussionThe study demonstrates that giving individuals greater control and agency in designing health services packages can increase their participation in the priority setting process, align individual and community priorities, and potentially enhance the legitimacy and acceptability of priority setting. Methods that enable group level deliberation and individual level priority setting may be necessary to reconcile plurality. The paper also highlights the importance of capturing the details of public engagement processes and transparently reporting on these details to ensure valuable outcomes.Public ContributionThe facilitator of the CHAT groups was a member from the community and underwent training from the research team. The fieldworkers were also from the community and were trained and paid to capture the data. The participants were all members of the rural community‐ the study represents their priorities.

Funder

South African Medical Research Council

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health

Reference35 articles.

1. United Nations. Transforming our world: the 2030 Agenda for Sustainable Development. Department of Economic and Social Affairs.2015. Accessed February 8 2023.https://sdgs.un.org/2030agenda

2. United Nations. UN system framework for action on equality. United Nations—CEB.2016. Accessed February 10 2023.https://unsceb.org/un-system-framework-action-equality

3. UN. World social report 2021: reconsidering rural development. UN DESA Publications.2021. Accessed February 10 2023.https://desapublications.un.org/publications/world-social-report-2021-reconsidering-rural-development

4. Accessibility of healthcare in rural Zimbabwe: The perspective of nurses and healthcare users

5. United Nations Department of Economic and Social Affairs.Identifying Social Inclusion and Exclusion.2016):17‐31.doi:10.18356/5890648c-en

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