Development and preliminary evaluation of the Neurofibromatosis Type 1 Adult Quality of Life (NF1‐AdQoL) questionnaire-Reference-Cited by-同舟云学术

Development and preliminary evaluation of the Neurofibromatosis Type 1 Adult Quality of Life (NF1‐AdQoL) questionnaire

Published:2021-10-12 Issue:2 Volume:47 Page:271-281
ISSN:0307-6938
Container-title:Clinical and Experimental Dermatology
language:en
Short-container-title:Clin Experimental Derm

Author:

Crawford H.¹²,North K.³,Wilson M. J.⁴⁵,Berman Y.⁵⁶,McKelvey‐Martin V.⁷,Morrison P. J.⁷⁸^ORCID,Fleming J.⁶,Barton B.¹²⁹^ORCID

Affiliation:

1. Faculty of Medicine and Child Health University of Sydney Sydney NSW Australia

2. Kids Neuroscience Centre The Children’s Hospital at Westmead Sydney NSW Australia

3. Murdoch Children’s Research Institute Melbourne VIC Australia

4. Department of Genetic Medicine Westmead Hospital Sydney NSW Australia

5. Discipline of Genomic Medicine University of Sydney Sydney NSW Australia

6. Department of Clinical Genetics Royal North Shore Hospital Sydney NSW Australia

7. School of Pharmacy and Pharmaceutical Sciences Ulster University Coleraine UK

8. Department of Medical Genetics Belfast City Hospital Belfast UK

9. Children’s Hospital Education Research Institute The Children’s Hospital at Westmead Sydney NSW Australia

Publisher

Wiley

Subject

Dermatology

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1111/ced.14867

Reference35 articles.

1. Birth incidence and prevalence of tumor-prone syndromes: Estimates from a UK family genetic register service

2. Clinical and genetic aspects of neurofibromatosis 1

3. Quality of life among adult patients with neurofibromatosis 1, neurofibromatosis 2 and schwannomatosis: a systematic review of the literature

4. Evaluation of QoL in neurofibromatosis patients: a systematic review and meta-analysis study

5. e‐provide.Pediatric Quality of Life Inventory™ Neurofibromatosis Module (PedsQL™ Neurofibromatosis Module). Updated August 2018. Available at:https://eprovide.mapi‐trust.org/instruments/pediatric‐quality‐of‐life‐inventory‐neurofibromatosis‐module(accessed 7 July 2021).

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3. Impact of neurofibromatosis type 1 on quality of life using the Skindex-29 questionnaire quality of life in NF1;Orphanet Journal of Rare Diseases;2024-02-24

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