Towards global consensus on core outcomes for hidradenitis suppurativa research: an update from the HISTORIC consensus meetings I and II

Author:

Thorlacius L.12ORCID,Garg A.3,Ingram J.R.4ORCID,Villumsen B.5,Theut Riis P.1ORCID,Gottlieb A.B.6,Merola J.F.78,Dellavalle R.9,Ardon C.10,Baba R.11,Bechara F.G.12,Cohen A.D.1314ORCID,Daham N.15,Davis M.16,Emtestam L.17,Fernández-Peñas P.18,Filippelli M.19,Gibbons A.20,Grant T.21,Guilbault S.22,Gulliver S.23,Harris C24,Harvent C.25,Houston K.20,Kirby J.S.26,Matusiak L.27,Mehdizadeh A.28,Mojica T.29,Okun M.30,Orgill D.31,Pallack L.32,Parks-Miller A.333435,Prens E.P.9,Randell S.22,Rogers C.36,Rosen C.F.37,Choon S.E.38,van der Zee H.H.939,Christensen R.2,Jemec G.B.E.1

Affiliation:

1. Department of Dermatology; Zealand University Hospital, Roskilde; Health Sciences Faculty; University of Copenhagen; Denmark

2. Musculoskeletal Statistics Unit; The Parker Institute, Bispebjerg and Frederiksberg Hospital; the Capital Region of Denmark; Copenhagen Denmark

3. Department of Dermatology; Hofstra Northwell School of Medicine; New Hyde Park NY U.S.A

4. Institute of Infection and Immunity; University Hospital of Wales; Heath Park Cardiff U.K

5. Patient Representative; The Patients' Association HS Denmark; Denmark

6. Department of Dermatology; New York Medical College; Valhalla NY U.S.A

7. Harvard Medical School; Boston MA U.S.A

8. Department of Dermatology and Department of Medicine; Division of Rheumatology

9. Dermatology Service; U.S. Department of Veteran Affairs Medical Centre; Denver CO U.S.A

10. Department of Dermatology; Erasmus MC; University Medical Center; Rotterdam the Netherlands

11. Former National Advisor to the Ministry of Health; Malaysia

12. Department of Dermatologic Surgery; St Josef Hospital; Ruhr-University; Bochum Germany

13. Siaal Research Center for Family Medicine and Primary Care; Faculty of Health Sciences; Ben-Gurion University of the Negev; Beer-Sheva Israel

14. Chief Physician's Office; Department of Quality Measurements and Research; Clalit Health Services; Tel-Aviv Israel

15. Department of Dermatology; Tufts Medical Center; Boston MA U.S.A

16. Department of Dermatology; Mayo Clinic; Rochester MN 5590 U.S.A

17. Department of Dermatology; Karolinska University Hospital; Stockholm Sweden

18. Department of Dermatology; Westmead Hospital; Sydney Medical School; The University of Sydney; Sydney Australia

19. Patient Representative; Morgantown WV U.S.A

20. Patient Representatives; The Hidradenitis Suppurativa Trust; Rochester U.K

21. Patient Representative; Tucson AZ U.S.A

22. Patient Representative; Hope for HS; Detroit MI U.S.A

23. Department of Research; Newlab Clinical Research; NL Canada

24. Patient Representative; Cardiff U.K

25. Patient Representative; Patients' Association: La Maladie de Verneuil en Belgique; Erbisoeul Belgium

26. Department of Dermatology; Penn State Hershey Medical Center; Hershey PA U.S.A

27. Department of Dermatology, Venereology and Allergology; Wrocław Medical University; Wrocław Poland

28. Dalla Lana School of Public Health; University of Toronto; ON Canada

29. Patient Representative; Brick NJ U.S.A

30. Fort HealthCare; Fort Atkinson WI U.S.A

31. Division of Plastic Surgery; Brigham and Women's Hospital; Boston MA U.S.A

32. Patient Representative; Longmont CO U.S.A

33. Hope for HS; Detroit MI U.S.A

34. Hidradenitis Suppurativa Foundation, Inc.; Santa Monica CA U.S.A

35. Department of Dermatology; Henry Ford Hospital; Detroit MI U.S.A

36. Patient Representative; HS Aware; Toronto ON Canada

37. Division of Dermatology; Toronto Western Hospital; University of Toronto; Toronto ON Canada

38. Department of Dermatology; Hospital Sultanah Aminah; Johor Bahru Malaysia

39. Department of Dermatology; Havenziekenhuis, Rotterdam the Netherlands

Funder

International Dermatology Outcome Measures (IDEOM)

Region Zealand Research Foundation

Oak Foundation

Health and Care Research Wales

Publisher

Wiley

Subject

Dermatology

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